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Saturday, April 5, 2014, 3:30 PM - 5:00 AM

Rayland has rhizomelic chondrodysplasia punctata. A rare and potentially lethal form of dwarfism. He has had 3 surgeries on his eyes for cataract removal, surgery to place hos feeding tube. He has shortened upper arms and upper legs, he has contractures (stiff joints and muscles). He has a large ASD (hole in his heart) if totaled up he has spent half his life in the hospital. He is on oxygen at night, we travel to shands on average at least once every 6-8 weeks. We also go to Tampa to shriners hospital. He has splints for his hands and will be getting some for his feet as well. He is 15 months old he weighs 8 lbs 4 oz and he is about 22 inches long.

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2800 west 9 mile rd

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